Every time that Madeline's medications have been changed, and I do mean every time, whether or not they reduced the number or frequency of seizures, the new medications have always changed the seizures in some fundamental and usually profound way.
Although Modified Atkins Diet for Seizure Control (MAD) is not a medication, it too has changed Maddy's seizures and I daresay, for the BETTER. Whether or not this change is permanent, only time will tell but if history is any indicator, the change is permanent.
The change: What used to be a noisy, violent seizure has become a silent, almost still seizure. So silent and still in fact that they don't wake me up. Typically when Maddy rolls over in bed it wakes me up and I look at her to see if she's seizing or shifting but for the last week or so, on the nights when she has had seizures, I've slept right through them.
The Roller-Coaster: Just a few days into the diet, Maddy's seizures disappeared. Then she missed her morning dose of medication (TWICE!) and her seizures returned. She got back on track with her medications and the seizures disappeared. Then she got food poisoning (not at home) and the seizures returned. As she's gotten better over the last three days, the returned seizures have been fewer and fewer each night, and they've been the quiet ones.
Amazing Development: This morning when Maddy got up she had two things to report. First, she had NO seizures last night. PRAISE GOD.
But here's the second piece of news, the AMAZING one: for the first time in more years than she can remember, she had a DREAM !
Her seizures so disturb her sleep that as far as she knew, she had stopped dreaming. Whether or not that's true, we have no idea but she has no memory of any dreams. Last night however, she had a very vivid dream about a book that her sister is reading and she remembered it in great detail!!
How is that for AMAZING!?!?! After ten years of seizures, my little girl is DREAMING again!!
Although Modified Atkins Diet for Seizure Control (MAD) is not a medication, it too has changed Maddy's seizures and I daresay, for the BETTER. Whether or not this change is permanent, only time will tell but if history is any indicator, the change is permanent.
The change: What used to be a noisy, violent seizure has become a silent, almost still seizure. So silent and still in fact that they don't wake me up. Typically when Maddy rolls over in bed it wakes me up and I look at her to see if she's seizing or shifting but for the last week or so, on the nights when she has had seizures, I've slept right through them.
The Roller-Coaster: Just a few days into the diet, Maddy's seizures disappeared. Then she missed her morning dose of medication (TWICE!) and her seizures returned. She got back on track with her medications and the seizures disappeared. Then she got food poisoning (not at home) and the seizures returned. As she's gotten better over the last three days, the returned seizures have been fewer and fewer each night, and they've been the quiet ones.
Amazing Development: This morning when Maddy got up she had two things to report. First, she had NO seizures last night. PRAISE GOD.
But here's the second piece of news, the AMAZING one: for the first time in more years than she can remember, she had a DREAM !
Her seizures so disturb her sleep that as far as she knew, she had stopped dreaming. Whether or not that's true, we have no idea but she has no memory of any dreams. Last night however, she had a very vivid dream about a book that her sister is reading and she remembered it in great detail!!
How is that for AMAZING!?!?! After ten years of seizures, my little girl is DREAMING again!!
Lorri this is the greatest news ever! Use this as your daily diary to post the seizure activity for all of us.
ReplyDeleteYea Maddy!